Sunday, December 06, 2009
Gingerbread Houses
Saturday, November 28, 2009
Christmas tree fun
Saturday, November 21, 2009
Baby shower for little sis!
Saturday, November 07, 2009
Sam
Sam at Vanderbilt Children's before his procedure.
By this time we had found that he cannot tolerate any dairy, wheat, soy, eggs, peanuts, fish, white rice or beans and had eliminated them from his diet. Sam finally underwent an endoscopy at the end of October. Biopsies of his esophagus showed some significant inflammation. The GI doctor feels that these findings in the setting of his dietary restrictions and treatment for reflux suggests that Sam probably has a condition called eosinophilic esophagitis that is being partially managed by these measures. This condition is basically a reaction to foods or environmental allergens in the esophagus that can cause pain and inflammation. Unlike anaphylactic food allergies that cause an immediate reaction, this kind of allergy often has a very delayed symptom response of 36-48 hours or longer and often does not show up on traditional skin prick type allergy tests. This explains why all of his allergy tests were normal and it took us so long to figure out what foods make him sick.
Sam with his special pancakes and EO28 supplement. Its this look on his face that keeps me going!
Since changing his diet, Sam has been like a whole new child we have never known up until now! He is able to play, laugh, smile, sleep through the night and even eats! His skin rash went away and his poop is normal. Because his diet is so restricted, he drinks a special hypoallergenic supplement to help him get enough calories. Sam gained almost 2 pounds in a month after starting this supplement. It is tricky for me to maintain this special diet- most packaged foods contain at least one ingredient that will make him sick. Because he is still too little to understand why he can't eat what everyone else has, we have made some major adjustments in our family's diet and mealtime routines and provide him with as many foods that look "normal" as we can. He seems to have an uncanny ability to detect off limits foods on other people's plates, and then throw a fit that ruins the entire meal for everyone. Clearly we are working on this as much as we can and it will get better as he gets older, but its hard to stick to a tough "eat what's in front of you or go hungry" approach when your child has been sick and underweight for months. We are also getting help from a special feeding therapist at Vanderbilt to use appropriate strategies to help him develop and maintain good eating behaviors.
This means cooking two versions of everything or just cooking everything allergy free. At first every trip to the grocery store was a major anxiety provoking nightmare. This lead to the necessity of learning the special considerations of gluten, egg and dairy free baking! Thank you Jesus for allergy cooking recipe blogs! Seeing my baby eat special treats that make him happy and won't hurt him makes it all worthwhile.
There are still many unanswered questions about additional foods that Sam probably reacts to and how his disease will evolve over time. For many kids it is a lifelong condition. The main treatment is dietary managment. We are looking at taking him to Cincinnati Children's Hospital for special allergy testing called an atopy patch test, which is not available in Nashville. Managing a child's diet based on the results of this test has been shown to successfully treat eosinophilic esophagitis in 75% of kids.
I am so thankful that God has been faithful and near to us as we have walked this challenging road with our precious little boy. I am so constantly aware that there are many families dealing with problems much more scary and serious than this. We are thankful for all of our friends and family who have and continue to pray for us and Sam and support us through this discovery process.
Tuesday, October 27, 2009
Bible memory fun
Saturday, October 10, 2009
RIP old laptop.
Culinary adventures are underfoot! I could write for several hours about the culinary adventures of the past several months driven by having a child with yet-to-be definined serious issues with tolerating foods. But lets not do that today. I just wanted to share that I just bought a leg of lamb. Lamb is supposed to be one of the best tolerated meats for people with odd food issues such as my little Sammy. SO here we go into the crockpot with the big bloody mess of meat. Should be interesting. Would consider posting photos of the finished product, (and of Sam's face when he tastes the meat) but that will have to wait for a day when I have my own hard drive to clutter up with such items. Okay then. That's all I have to say about that.
Sunday, September 27, 2009
Rainy day activities
The boys thought the washer and dryer would work perfectly as deep sea submersibles. They came up with this all on their own.
Friday, September 25, 2009
Two wheelin'
On Tuesday, Jake decided that he was ready to take off his training wheels. Since Daddy was home, we all went outside for the big event. Mommy did the honors with the socket wrench and let Daddy get him started. It took him all of 5 seconds to take off and he hasn't looked back ever since! Meanwhile, Ben was waiting on the sidelines, having a fit because he wanted his training wheels off too. I held him off for about 3 minutes to make sure Jake didn't need any more help, then I took Ben's off. It took him all of 2 trips up the street with Daddy before he was cruising along on two wheels without much problem either! He still needs a little steadying getting started, but once he is going he is gone. I can't believe both boys ditched their training wheels on the same day. And Ben has just turned 3 years old! Now if only he will want to be a big boy enough to poop in the potty, what a milestone that will be.
Tuesday, September 15, 2009
Baby sister photo shoot
Happy Birthday to Ben!
Saturday, August 22, 2009
Jake's first soccer game
It was a cool August day in Tennessee, if you can imagine that. Jake's first game was a blast to watch. He did a great job listening to the coach and staying with the ball most of the time although he did not actually kick the ball himself during the game. He seemed to have a fun time playing and Ben and Sam enjoyed watching, eating their snacks, and kicking balls on the sidelines. We look forward to watching his skills develop this season and most of all just enjoy having a new fun activity to do as a family.
Tuesday, August 18, 2009
Baby sister on the way!
Friday, July 03, 2009
Grandma

Thursday, July 02, 2009
The littlest Pereira
Monday, May 25, 2009
Henry
Thursday, April 23, 2009
Bible 101
Today as we finished reading a book called How Much God loves You, I asked the boys, "How much does God love us?" Jake replied earnestly, "Twenty dollars?"
I guess we have a ways to go here.
Friday, February 06, 2009
Cold winter days.
Drink your vegetables
Here's the proof- they really do love it!